Team JJ

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Team JJ
P.O. Box 1381
Claremont, CA 91711

info@teamjj.org

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Medical history

Diagnoses

Werner Mesomelic Dysplasia with Hirschsprung’s Disease

         (absent tibia bilaterally w/clubbed feet polydactyly and syndactyly)

Double outlet right ventricle with pulmonary stenosis

undescended testes with hernias

micrognathia

 

Procedures

6/9/08: lap soave pull through for Hirschsprung’s and circumcision by Dr. Donald Moores @ LLU

7/16/08: double outlet right ventricle, s/p Blalock-Taussig (BT) shunt by Dr. Bailey @ LLU

8/20/08: GERD study due to lack of eating, frequent vomiting, & screaming because of acid @LLU

12/3/08: G-Tube placement by Dr. Donald Moores @ LLU

8/17/09: correction of polydactyly thumbs by Dr. Barry Watkins @ LLU

8/17/09: urology surgery to lower testes and close hernias by Dr. David A. Chamberlin @ LLU

11/10/09: leg amputation and disarticulation above the knees by Dr. Shyam Kishan @ LLU

5/13/10: heart catheritization @ CHLA

8/23/10: correction of double outlet right ventricle by Dr. Vaughn Starnes @CHLA

Just born  5-29-11  8lbs. 8oz.

 

Our beautiful son.  He had his first surgery while in the NICU for hirschsprungs

 

Giving up our son for heart surgery at 7 weeks old was aweful.

 

Joshua appeared to make it through his first heart surgery for a shunt okay.

 

The following day we almost lost him.  He had CPR twice, once for 30 minutes.

 

We prayed for Joshua's survival and nuerologists checked for brain damage.

Back to the hospital again.  Vomiting, not eating, and possibly acid.  GERD test 

Back at the hospital for a g-tube placement surgery. 6 1/2 months old

 

Getting ready for surgery

 

mickey g-tube placed to help with feedings and to inflate when too skinny

 

Following surgery on hernias, testes, and 4 thumbs 1yr. 3mos.

 

Following leg amputations- We were sad that he lost the knees also. 11-09 1.5yrs

 

This recovery was the hardest of all- one leg opened up and severe constipation

 

The big one.  Heart surgery to correct DORV.  We had been worried. 8-11  2yrs3mo

 

He made it! Thank you Lord!  Possibly no more surgeries.  Potentially 3 more.

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Team JJ
P.O. Box 1381
Claremont, CA 91711

info@teamjj.org

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